Wards Wayfinder - Ward's Foundation

Ward's Wayfinder

A Resource Hub for
Rare Disease Families

A rare disease diagnosis feels like being lost in the
wilderness – finding online resources feels like going down an endless rabbit hole. Ward’s Wayfinder pulls together high-quality resources into a single online platform to help pull families out of the rabbit hole with answers to some of their most common questions and challenges.

Here’s what you’ll find on Ward’s Wayfinder:

*Ward’s Wayfinder is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the
advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition and
disease-specific guidance. Ward’s Wayfinder is designed to provide comprehensive guidance and support for families navigating
rare diseases. We are pleased to equip you with tools and recommendations for specialized organizations through our network of
community partners and providers.

Explore Your Support Network

with an Eco-Map

FAQ

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Recommend a Resource

Found a helpful resource that other families might benefit from? Share it with us! We’re always looking to expand our library of high-quality tools and guides.

programs@wardsfoundation.com

Get Connected to Support

Peer Support Network

Feeling alone in your rare disease journey? You’re not. The Ward’s Foundation Peer Support Network connects families and caregivers who understand the challenges you’re facing.
Join our community for in-person and virtual events designed to build connection and support.

Crisis Navigation

Overwhelmed by a rare disease diagnosis? Our Crisis Navigation program provides mental health support and helps families navigate complex medical and community resources.
A licensed social worker is here to guide you every step of the way.

Raise awareness

Share your story

By telling your story, you provide support to other families in similar situations and help us raise awareness to advance rare disease support. If you would like to share your rare disease journey, please contact us at forward@wardsfoundation.com.