What we do
One in ten Americans will be diagnosed with a rare disease - 50% of these are children. And while the diseases themselves are unique, the struggles of a rare disease diagnosis are remarkably similar. We offer holistic support that helps families, their support network and medical professionals build a path forward.

Peer Support Network
The Ward’s Foundation Peer Support Network is a community of families and caregivers who have walked this road. The Network offers in-person and virtual events designed to build connection and support, so families can walk this road together.

Crisis Navigation
A child’s rare disease diagnosis feels uncertain, isolating and overwhelming. Our licensed clinical social worker helps to process the emotional weight of a diagnosis. We foster connections and provide guidance that helps families build confidence and develop self-advocacy skills to navigate the impact of their child’s diagnosis.

Ward’s Wayfinder
Finding online resources after a diagnosis feels like an endless internet rabbit hole. Ward’s Wayfinder pulls together high quality resources into a single online platform that helps families with their most common questions and challenges.
every dollar helps
reflecting on our journey
