Ward’s Wayfinder:

A Resource Hub for Rare Disease Families

A rare disease diagnosis feels like being lost in the wilderness - finding online resources feels like going down an endless rabbit hole. Ward’s Wayfinder pulls together high quality resources into a single online platform to help pull families out of the rabbit hole with some of their most common questions and challenges.

You’ll find information about advocating for your child, how to prepare for appointments, support resources for family and friends who want to help, and much more. Bookmark this Hub - it’s a resource you’ll visit again and again to equip you and your support network for the path ahead. 

‍Ward’s Wayfinder plans to launch the Resource Hub in late 2025. Check back for updates. 

Peer Support Network

The diversity of diagnosis in the rare disease community can make families feel like they are all alone. But while the diagnoses are all different, the experience for families is very much the same.
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The Ward’s Foundation Peer Support Network is a community of families and caregivers who have walked this road. The Network offers in-person and virtual events designed to build connection and support, so families can walk this road together.

‍The Peer Support Network plans to begin programming for families by the end of 2025. Check back for updates.

Crisis Navigation

You never expect to hear the words, "Your child has a rare disease."  Fear, uncertainty, and questions flood your mind—What does this mean? How will we get through this? Where do we even start? It’s overwhelming, emotional, and isolating.

Ward’s Foundation Crisis Navigation services provide the support you need when everything feels uncertain. Our licensed clinical social worker helps you process the emotional weight of a diagnosis, offering mental health support and connection to community resources. This service is designed to help families move from the initial crisis to a place of stability and confidence as they navigate the challenges of their child’s diagnosis.  

‍Ward’s Foundation is currently in the pilot phase of crisis navigation services. We are not yet accepting outside referrals.