Transition and Future Planning
National Organization for Rare Disorders (NORD)
The National Organization for Rare Disorders (NORD) is a group that helps people with rare diseases by providing resources, support, and unified voice for policy and research. It connects patients and caregivers with support programs, information about rare diseases, and a network of Centers of Excellence for treatment.
Family Support Network of North Carolina (FSN-NC)
The Family Support Network of North Carolina (FSN of NC) provides free, confidential support to families who have children with special needs. They connect families with trained mentors, resources, and support groups to help them navigate challenges and advocate for their children.
Program for Precision Medicine in Health Care (PPMH)
The Program for Precision Medicine in Health Care (PPMH) is an initiative at the University of North Carolina (UNC) that focuses on using a patient’s individual characteristics to provide more personalized medical treatment. Instead of a one-size-fits-all approach, precision medicine tailors healthcare by taking into account a person’s genetics, environment, and lifestyle.
Disability Rights North Carolina (DRNC)
Disability Rights North Carolina (DRNC) is a free legal aid organization that defends and advances the rights of people with disabilities throughout the state. As the state’s federally mandated protection and advocacy agency, DRNC helps North Carolinians with all types of disabilities fight discrimination, abuse, and neglect.
Transitions LifeCare
Transitions LifeCare is a nonprofit organization that offers care and support for people with life-changing or terminal illnesses, along with their families. Its main focus is on providing comfort and dignity, not on finding a cure.